"It was a complete shock, and came completely out of the blue," the 34-year-old mother said.

"I woke up one morning and my whole left arm had painful pins and needles, and it didn't go away all day.

"I had a pain in my neck I thought was a pinched nerve, but an MRI scan showed the legions.

"It had gotten so bad I couldn't use my left hand."

She said the varied nature and different symptoms caused by the disease means ongoing research is vital.

The disease disrupts the ability of parts of the nervous system to communicate, resulting in a range of signs and symptoms.

"There's a lot of people out there like me with young kids, struggling," she said.

"Because MS can be so varied with different symptoms, it's a case by case thing."

While she says her treatment is keeping the disease at bay, others are not so lucky.

"There is no cure, but the treatments do prevent relapses," she said.

Ms Revington raised over $1700 during May after taking part in MS Research Australia's The May 50K fundraising initiative.

"It was a great feeling and it was nice for friends and family who aren't close by to feel they are doing something to help," she said.

"Research is really important to find answers for everyone."