Ron Finneran, who contracted polio as a toddler and has had impaired mobility since, was surprised to learn he was unable to join the National Disability Insurance Scheme (NDIS) due to his age.
"I thought initially I'd be part of the scheme, but I soon realised the cut off was 65 years of age," the Merimbula-based OAM recipient said.
"It'd just give you certain reassurances for your future, and how you want to move forward rather than being subjected to what is available.
"The older I get the more support I need in the disability sector, for just mere living."
Along with Physical Disability Council NSW (PDCN) president Chris Sparks, he is calling on the NSW government to continue funding disability advocacy services, which Mr Sparks said was expected to lapse in 2020 and estimated to cost about $14million per year.
He said there were three main issues that involved advocates, including fixing things such as access to the Sydney Harbour, saving the government money and championing the cases of people who needed support.
"Every dollar spent on advocacy pays back more than $3 to the public purse," he said.
Mr Finneran, who is the chairman of the Bega Valley Access and Inclusion Committee, had difficulties in acquiring a wheelchair that suited his needs, and it took five months of advocacy from PDCN in order to get one.
"Had we not had, throughout the years, some sort of genuine advocacy service my lifestyle would certainly not be what it is today," he said.
"I'm concerned if we don't have that continued in NSW, we're going to have real problems in relation to quality of life."
Mr Sparks said while Member for Bega Andrew Constance had been exceptional in his role as disability minister, "the incumbent ministers wouldn't know a wheelchair from a Mack Truck".
Minister for Disability Services Ray Williams said in 2018 the NSW Liberals and Nationals government announced up to $13million per year in transitional funding for advocacy services until June 2020.
"In 2019/20 advocacy services can expect to receive the same funding they received in 2018/19 from the NSW government, plus usual indexation," Mr Williams said.
"The funding ensures people with disability in NSW are fully supported during implementation of the NDIS. It recognises it will take some time for the Commonwealth-led advocacy funding programs to reach maturity.
"The NSW government is working with the Commonwealth to ensure future funding for advocacy services meets the needs of people with disability and their families in NSW.
"The NSW Liberals and Nationals Government is proactively meeting with advocacy organisations to ensure we address any gaps that arise in the lead up to 2020 and beyond."